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Squazle
Member
Posts: 8

Now, I understand that we're a little different but have you ever experienced the phantom examination?  You know the one where it's a doctor or nurse you've never seen before and they read your notes and basically they have no consideration for your feelings or indication that you might have sussed them out because basically they are down right nosey? The conversation usually comes out of nowhere and involves the words "I think I need to examine you to check"  there is usually no explanation of what they want to check and no reason whatsoever.  They just want to look at something different.  Personally, this makes me feel like a guinea pig and a freak and I find it rather offensive.

Don't get me wrong, I really do not mind and I also understand the usefulness from a training aspect but if they want to have a look, why can't they at least be truthful and have a little respect and ask?  I would never say no, it really is just nice to hear the words "Would you mind if I had a look only I've never seen this before"

Has anyone else experienced this and do you agree?


--

2 Ovaries, 2 Uterus, 2 Cervix (never sure of the plurals!)

Extensive endometriosis (2 laps and it keeps creeping back worse :()

Two blocked tubes from the endo

Recently diagnosed with adenomyosis

PCOS

Just start the first round of IVF

November 16, 2012 at 1:13 PM Flag Quote & Reply

Happysparkles
Member
Posts: 7

I has a nurse taking my blood say the following:

Nurse: 'omg that is so bizarre' who is your dr? 

Me: Dr xxxx

Nurse: wow dr xxx must have found that so strange!

Me (to myself): I thought he was a specialist dr and should not find this so 'bizarre' thanks for that...

Also I've had:

The dr spending 2.5 hrs with me and my husband on the pre consultation going on about who knows what, and then spending 5 min on the actual tests we had to do.  Then chargning me a full consultation even though I was completely unprepared for the HSG in my last post.

I'm looking for a new specialist now. I have a few names I want to check out.

The hardest thing is finding someone who understands, just spoke to my mum and cried about my whole HSG pain test and she was very sympathetic which was nice.



November 17, 2012 at 12:04 AM Flag Quote & Reply

Niki
Member
Posts: 4

During my first c-section one resident and two interns joined the doctor for a look at my 'unique' anatomy. After taking my baby out and suturing my uterus they all spent what seemed like 15 minutes or so examing it all. I could hear snippets of their conversation. I mean, I was drugged, my baby was being worked on very near to me,there was a lot going on but I wanted to say, C'mon, guys, there's literally only a sheet between us. I can hear you...

At my second c-section only one resident was there with the dr, so there must not have been any interns that night. It comes with the territory I guess.

November 18, 2012 at 3:43 PM Flag Quote & Reply

Squazle
Member
Posts: 8

I understand it comes with the territory but that doesn't mean I have to accept being treated like a specimen.  I would just like a little compassion and consideration.  I've started asking more questions now when I can see they are clearly making up reasons to have a prod and a poke.  I don't think we should just put up with it.

--

2 Ovaries, 2 Uterus, 2 Cervix (never sure of the plurals!)

Extensive endometriosis (2 laps and it keeps creeping back worse :()

Two blocked tubes from the endo

Recently diagnosed with adenomyosis

PCOS

Just start the first round of IVF

November 19, 2012 at 11:02 AM Flag Quote & Reply

Niki
Member
Posts: 4
I agree we should never feel like specimens. Due to other health issues being observed for multiple anomolies began early for me & I think in many ways it seems normal to me. At 18 or so when my uterine condition was diagnosed, to me if was just one more thing. I see you're starting IVF. I hope it goes well.
November 19, 2012 at 2:52 PM Flag Quote & Reply

Leti
Member
Posts: 2

Since I amnew in the website, I would like to shortly introduce myself: I am Italian (sorryfor my English), 37 years old, 1 kidney and UD with 2 cervixes and 1 vagina. Ihave got some other small gifts as an accessory spleen, few bones more, ect...,but nothing that it is affecting my health.

Medicalexaminations are often a nightmare for me, every ultrasound/NMR could be asurprise and I am again the guinea pig of the hospital. Luckily I have now agood general doctor who knows me and takes care of me and I am not specialanymore for him.

Most of thetime I feel happy with my body and I am convinced of having accepted myself as Iam. However there are still many situations that make me feeling different,abnormal, insecure and that bring me back to be the teenager, confused andscared about the strangeness of her body.

Most ofthese situations happen at the gynecologist or in my private life. Last year Ihad to do a pap test and some smear tests to check for a possible infection. OnceI was alone with the nurse (stressful moment for me) I explained to her my “double”situation and she freaked out. At the beginning she did not believe me, “it isimpossible” she said, and then after having confirmed with her eyes that I wasnot crazy, she started to be stressed since in their computer system it wasimpossible to associate two pap tests or two smear tests to the same person.

Withoutdoing any test she asked me to dress up and to wait again outside. I went backto the crowed room full of patients waiting for their turn.

At that momentthe nightmare started. All the nurses and receptionists start speaking about abig issue that never happened in the medical center. One receptionist start tomake phone calls in front of all the patients and asking loudly what she coulddo to solve the situation of a “malformed” woman with duplicate genital organsthat needs the duplication of the code for her tests…I wanted only to disappear.

Patientsstart to speak among each others: “wow, duplicate sexual organs?   Poorher!!!” and I was only hoping that nobody would associate me with the phonecalls. Nobody did it until the receptionist called my name, loudly. Shecomplained that I should have informed the medical center about my malformationbefore going to the exam in order to give time to them to organize this issue.She gave me two codes as I would be two patients and I had to pay a double feeas two persons, one person for cervix. The doctor entered in that moment andbrought me to another room: she asked me sorry, many times, but this did notchange my feelings.

I did thedouble exam, left the medical center with all the people looking at me as acircus phenomenon.

Out of themedical center (where I will never go back), I started crying and I fell downwaking in the street, my legs start bleeding…a horrible day, simply to forget.

I feel badeven now remembering this situation.

 

November 19, 2012 at 3:07 PM Flag Quote & Reply

Leti
Member
Posts: 2

Sorry for my long post...moreover I wander off the point of this specific forum. My feelings got the upper hand and I started to describe my feelings. As most of you I also had many phantom examinations. Every year when I do an ultrasound check of my kidney, I end up surrounded by a group of curious doctors and have a full abdominal ultrasound. With the time I got used to this, however it would be nice if sometimes they would ask me : "do you mind?".  

Have a nice evening

Leti

November 19, 2012 at 5:15 PM Flag Quote & Reply

Happysparkles
Member
Posts: 7

Oh that reminded me about a pap smear, and the dr said:

'you will get sent a bill in the post'

And then

'hehe, I wonder if you will get billed twice or not!???'

Still unsure if I was billed twice or not.

To the above poster, sorry for your sadness.  I've mentioned before I have 2 uterus, 2 ovaries, 2 cervixes, 1 vagina and no septum to worry about.


November 19, 2012 at 6:29 PM Flag Quote & Reply

Squazle
Member
Posts: 8

Happysparkles, that is exactly what I mean, we deserve to be treated with a little respect, I don't think that is asking too much to be honest.  I can't believe you were treated like that at the doctors, it's disgraceful, I would have complained. 

Yes, I have egg collection tomorrow so fingers crossed all round xx

--

2 Ovaries, 2 Uterus, 2 Cervix (never sure of the plurals!)

Extensive endometriosis (2 laps and it keeps creeping back worse :()

Two blocked tubes from the endo

Recently diagnosed with adenomyosis

PCOS

Just start the first round of IVF

November 20, 2012 at 7:27 AM Flag Quote & Reply

Happysparkles
Member
Posts: 7

I know, my husband and I both don't like him.  I feel like I'm a patient to add a notch to his belt to say he's had a patient like me.  He has one other patient with UD and she left him to see another dr in America for IVF and our dr spent about 30 minutes telling us how great HE was and how this other dr was in fact his sister in laws brothers, brother in law (or some relation, I tuned out) and wasn't so great etc etc and he knew him. 

As he's hurt me twice now, for the pap smear and the HSG I do not think his bedside manner is good.

Today I will ring the other drs!

Good luck with your egg collection.  Please update us on the results.  Will be thinking of you :)


November 20, 2012 at 3:58 PM Flag Quote & Reply

Happysparkles
Member
Posts: 7

Squazle at November 20, 2012 at 7:27 AM

Happysparkles, that is exactly what I mean, we deserve to be treated with a little respect, I don't think that is asking too much to be honest.  I can't believe you were treated like that at the doctors, it's disgraceful, I would have complained. 

Yes, I have egg collection tomorrow so fingers crossed all round xx

Squazle, I wish you all the bet for a successful egg collection.

November 24, 2012 at 5:50 PM Flag Quote & Reply

MLSnyder
Member
Posts: 4

I've always been billed once for the exam and twice for the PAP because they're two separate tests.  That being said, when I delivered our daughter via emergency cesarean, my doctor asked a nurse to take a picture of my uterus after he sutured it.  They were so excited about my uterus that I felt like my baby was an after thought.  It honestly made me wonder if it was really "medically necessary" to have a c-section or if he just wanted to use me as a guinea pig.  :/

December 28, 2012 at 5:36 PM Flag Quote & Reply

JustMe
Member
Posts: 2

Hello all, I am thankful to have found this site. I am 30 years  old and learned of my UD when I was 16. I have had very similar dr. visits, it does get irritating. I don't understand why there is not more information givin to the Dr./ Nurses on UD. My very first gyno was actually the same Dr. that delivered me. He was very informative on the situation. He has since retired and I am really struggling with finding a Dr. that knows anything about UD. Instead of the comments and questions. Seriously, someone should educate these people, It is not my place to do so!

On a liter note....it is really nice to hear the stories of child birth with UD. I also had heard many horror stories. This forum is really giving me second thoughts on having a child. Thank You for sharing.

January 3, 2014 at 11:43 AM Flag Quote & Reply

Rocky
Member
Posts: 4

Hi,

I will be going into surgery in a few weeks time, to have my fallopian tube removed and the vaginal septum. They have decided to do this so i can have IVF, i just wandered how you got on with the IVF? I had an ectopic pregnancy last year and to felt like a guinea pig, each time i had a blood test thay also asked can i just check if i can feel anything!!! it was quite demoralising and once the ectopic was over i decided to start saying no to being checked over!!! it really was doing no more than a look for themselves!!

January 13, 2014 at 3:40 PM Flag Quote & Reply

Squazle
Member
Posts: 8

Rocky at January 13, 2014 at 3:40 PM

Hi,

I will be going into surgery in a few weeks time, to have my fallopian tube removed and the vaginal septum. They have decided to do this so i can have IVF, i just wandered how you got on with the IVF? I had an ectopic pregnancy last year and to felt like a guinea pig, each time i had a blood test thay also asked can i just check if i can feel anything!!! it was quite demoralising and once the ectopic was over i decided to start saying no to being checked over!!! it really was doing no more than a look for themselves!!

Hi Rocky

Sorry for not being around on here for a while, life kind of gets in the way!  Hope you're ok? 

With regards the IVF we get three funded cycles the first was unsuccessful with no frozen embryos, the second was unsuccessful with two frozen and we are back at the hospital in February to find out more.  I have to say the IVF process is a long drawn out roller coaster to the point now where some days I feel I have had enough and I just can't face it again, we have a go with the frozen ones and then if they are unsuccessful, one more cycle.

I felt like a guinea pig before IVF now I feel like a guinea pig with four heads!!!  It doesn't get any better trust me.

Today I'm of the opinion that if it happens it happens, if it doesn't there is nothing anybody can do.  Yes we could pay for more cycles but would I go into a casino with £10,000 and put it all on red?  Not a chance so we have decided we won't be self funding, you have to draw a line somewhere.


I wish you all the luck in the world and patience and tolerance to put up with more poking and prodding.  Just remember, every body is different, just because my situation doesn't appear to have a happy ending, it doesn't mean yours will.

Hope everything goes well with the surgery, drop me a message if you like and i get an email notification so I know you have been in touch xx

--

2 Ovaries, 2 Uterus, 2 Cervix (never sure of the plurals!)

Extensive endometriosis (2 laps and it keeps creeping back worse :()

Two blocked tubes from the endo

Recently diagnosed with adenomyosis

PCOS

Just start the first round of IVF

January 14, 2014 at 3:22 AM Flag Quote & Reply

Rocky
Member
Posts: 4

Hi Squazle,

thank you for your quick reply. I'm sorry you have not been successful so far. I do believe if it's ment to be, it will!!!if that helps? keep you chin up. I have heard the IVF process is quite down heartning, and i'm trying to prepare for something but not sure what really, i just take each day as it comes though.

I'm glad you have been so honest, i have read many stories on here and your right everyone is different with a different story to tell.

I am currently waiting for the operation date and they have said they have put me and partner on the waiting list for IVF, through the NHS.

Sometimes having UD does make me laugh, on one of my first visits to see a consultant, back when i was in my twenties-a gyno and his "trainee" were both having a good look and he had the cheek to ask me if i'd had any surgery down there!! This was just after i'd been told by a midwife that "i had two" to which i had no idea what they were all talking about. But for some time after i got a big hang up on that doctor asking if i'd had surgery as i totally felt like there was something really wrong down there!!!

Thankfully my mum did a bit of research....

So good luck in February, if you need a listening ear to one of them four heads you have i'll be about.

:)Rocky. x

--

:D

January 14, 2014 at 6:15 PM Flag Quote & Reply

Laurie
Member
Posts: 8

Delivered my twins in a teaching hospital after a month of being in for bed rest... I get it!

January 15, 2014 at 4:55 AM Flag Quote & Reply

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