My daughter was born with an absent right kidney. She started her period at 12 & the severe pain & cramping started a year later. She has a regular cycle but each month is filled with weeks of pain. After several frustrating & unhelpful visits to her pediatrician I made her an appointment with my GYN. The OHVIRA diagnosis truly shocked me. Further frustrations came when we couldn't find an experienced OHVIRA doctor even though we live in a city with a prestigious teaching hospital. We are now 3 weeks away from our big trip to the east coast to see a premier OHVIRA doctor. Now I'm trying to research as much as I can.